Adherence Intervention for Children With Newly Diagnosed Epilepsy

1. Purpose of Data Sharing: The primary purpose of data sharing is to facilitate collaborative research efforts aimed at advancing our understanding of pediatric epilepsy. Shared data may be used for secondary analyses, collaborative studies, or related research initiatives.

2. Scope of Data: The data to be shared includes but is not limited to medical records, demographic information, seizure frequency, and other relevant data collected during the course of the study.

3. Confidentiality and Privacy: We are committed to maintaining the confidentiality and privacy of study participants. Shared data will be de-identified to the greatest extent possible, and all efforts will be made to ensure the secure handling and storage of data.

4. Access and Use: Access to shared data will be granted to researchers and institutions involved in collaborative research projects. The data will be used exclusively for purposes related to pediatric epilepsy.

5. Duration of Agreement: This Agreement is valid for a period of [Specify Duration, e.g., 5 years] from the date of participant consent. Extensions or modifications to this Agreement may be considered with appropriate notification to participants.

6. Withdrawal of Consent: Participants have the right to withdraw their consent for data sharing at any time without affecting their participation in the primary study. Withdrawal instructions are outlined in the informed consent document.